Children with Down syndrome don't appreciate brittle or gooey foods; they favour items with a crispy, greasy feeling. According to study from Washington State University that was published in the Journal of Texture Studies, those preferences can result in a diet that is less nutrient-dense.
Trisomy 21, sometimes referred to as Down syndrome or Down’s syndrome, is a genetic disease brought on by the presence of all or a portion of a third copy of chromosome 21.
In the U.S., one in 772 babies (around 5,100 each year), are born with Down syndrome.
Feeding and swallowing impairments are common, and a key predictor of increased death among those individuals. It’s been known for years that children with Down syndrome don’t eat as much as typically developing children, but nobody has studied food textures as a factor. This research could help clinicians and parents determine what foods will get eaten, while hopefully prompting food manufacturers to tailor products to this population’s specific needs, Carolyn Ross said.
“Children with Down syndrome really enjoy foods like Pirate’s Booty and puffed corn,” said Carolyn Ross, a WSU’s School of Food Science professor. “Those foods aren’t of high nutritional value, but they’re dissolvable a huge plus for these children. Now the challenge is making nutritious foods with those characteristics.”
The paper examined what food textures children with Down syndrome liked or didn’t like and how those preferences compared to typically developing children’s preferences.
“This was a huge area of missing research,” Ross said. “There are many anecdotal stories, and you can go down an online rabbit hole to find information. But studies like this can help parents and clinicians know what these children will be most likely to eat and help reduce the incidence of choking. If we can add nutritional value to those foods, then we’ll help a lot of people.”
Choking is one of the leading causes of death among people with Down syndrome because they may not chew food enough or “pack” it, overfilling their mouths and cheeks without swallowing.
Children with Down syndrome have various health issues, more than typically developing children, including feeding and swallowing challenges and food texture sensitivities. Ross wants to help children with Down syndrome have more healthy eating options and become more comfortable with complex textures.
“We want to help people understand what food textures children with Down syndrome prefer, and how to move them from things like pureed foods to texturally complex foods, which tend to have more nutritional value,” Ross said.
Ross and her team sent boxes with 16 commercially available kinds of food to 218 children aged 11 to 18 in 30 states. Of those boxes, 111 went to children with Down syndrome, the rest to a control group of typically developing youth.
The boxes contained four items in each of four different texture groups to ensure that flavor wasn’t the reason for a texture preference. The research team asked parents about disliked flavors before the boxes were sent, to avoid those products. All children in the study ate one of each item every day for a week to make sure enjoyment wasn’t due to novelty.
The parents then filmed the children interacting with and eating each item, uploading the videos to the research team.
“We coded a lot of data; it’s the biggest home-use test involving children with Down syndrome that we’ve ever heard of,” Ross said. “And it showed a big difference in texture preference between children with and without Down syndrome.”